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The International Society on Thrombosis and Haemostasis ("ISTH”)
The International Society on Thrombosis and Haemostasis (“ISTH”) is a global not-for-profit membership organization advancing the understanding, prevention, diagnosis and treatment of thrombotic and bleeding disorders. We do not knowingly attempt to solicit or receive information from children. We understand that you are aware of and care about your personal privacy interests; we take those interests seriously.
ISTH is headquartered in North Carolina, United States. If you have questions about ISTH’s personal data policies or practices, please contact us:
International Society on Thrombosis and Haemostasis
610 Jones Ferry Road, Suite 205
Carrboro, NC 27510-6113
Phone: +1 919 929-3807
How ISTH collects and uses/processes your Personal Information
You can utilize some of ISTH’s services without giving ISTH your personal data. Much of the information on our Website is available to those who are not ISTH members. You can enter only the minimum amount of information (name and contact information) to your ISTH profile and you can edit your profile at any time. For ISTH members additional information is required (details below in the Membership section). Some personal information is necessary so that the ISTH can supply you with the services you have purchased or requested, and to authenticate you so that we know it is you and not someone else. You may manage your ISTH subscriptions and you may opt-out of receiving certain communications at any time.
In order to ensure that users are provided with accurate information about their accounts, and content geared to the interest of that user, we may ask for personal information when a user registers for, logs on to, or visits our websites or other Online Services, or participates in activities on our websites.
We may request a user's personal information when they:
- Log on to one of our websites or Online Services
- Place an order on one of our websites for products or services (such as, but not limited to registration for events);
- Register or create an account on any of our websites;
- Send us an email or otherwise contact us using the online tools that we have provided on any of our websites, including for example "Contact Us” features;
- Submit customer ratings or reviews, testimonials, product ideas or ideas for the classroom or other education experience;
- Sign up for one of our newsletters, or request information, marketing materials or other communications;
- Participate in any social or community areas, including for example blogs and forums; and/or
- Enter any of our contests or promotions.
As noted above, our websites and Online Services also collect some usage information automatically. Please see below for more information.
When you become an ISTH member, we collect information about you including (but not limited to) your name, email, mailing address, phone number, designation, place of work, year of birth, primary professional focus, prescriptions, primary basic research area, and primary medical specialty area. For associate members, we also require proof of status from an individual’s university. Members may edit their profile at any time to change, add, or make private personal information.
We process your personal information for membership services, to deliver member benefits to you, and to inform you of ISTH-related events, content, and other benefits or opportunities associated with your ISTH membership. ISTH may also use this information to help the ISTH understand its members’ needs and interests to provide products and services to meet its members’ needs.
2. Congresses, Workshops, Events, Meetings, On-line Courses, and Conferences
The ISTH sponsors events including in-person conferences like the Congresses, as well as workshops, education courses, webinars, and Scientific and Standardization Committee (SSC) meetings (collectively “events”). If you register for one of our events and you are a member, ISTH uses the information in your member account to provide you with information and services associated with the event. If you are not a member and you register for one of our events, we will collect your name and contact information and use it to provide you with information and services associated with the event.
ISTH also collects information from presenters and lecturers at its events, including name, employer and contact information, and photograph. ISTH may also collect voluntarily-provided evaluation information provided by event attendees. ISTH may also make and store a recording of the event in certain instances.
ISTH may keep a record of an individual’s participation in ISTH events as an attendee or presenter, which may be used to provide membership services (such as, for example, to tell you about other events and publications). It may also be used to help the ISTH understand our members’ needs and interests to better tailor our products and services to meet those needs.
ISTH offers publications for its members and the general public. ISTH may provide a link to another organization’s website (for example, databases and registries) which may contain content that is relevant and useful. To access this content, you will leave the ISTH website, and ISTH is not responsible or liable for content provided by these third party websites or personal information they may collect from you.
You may subscribe to some of ISTH’s publications without becoming a member. For example, you may sign up to receive the ISTH’s eNewsletter by providing us with at least your first name and last name, an email address, and the country in which you live. ISTH does not share this information with any third party other than to provide you with the eNewsletters and other communications from ISTH which ISTH believes may be of interest.
If you participate in ISTH training, you may sign up directly through ISTH and we will collect your name, contact and payment information (if there is a fee). You may, alternatively, sign up for training by or through a third party such as one of our partners. We may also use independent contractors to conduct the training and third parties to provide the training venue. Your personal information will be stored in our database (hosted by cloud service provider) and may also be shared with our training partners, instructors, and/or the venue hosting the event (to verify your identity when you arrive). ISTH’s training partners, instructors, and training venue hosts have agreed not to share your information with others and not to use your personal information other than to provide you with ISTH products and services.
5. Your Communications with ISTH
While using some of our products or services, you may have the opportunity to provide photographs, videos or other materials that may contain information that would enable identification of the user. Bearing this in mind, you should review any material you provide, to ensure that it is appropriate for sharing. Similarly, some of our Online Services may offer online social, community or other communication features that allow users to post, or share with others, messages, stories, pictures, artwork, videos, testimonials, lesson plans, or other content. Along with such content, users also may be given the opportunity to post certain personal information about themselves, their school and other miscellaneous information related to the content.
Please note that although ISTH may take various steps to protect our users, we cannot guarantee that content posted by a user will not be seen by someone other than the audience intended by the user. Bearing this in mind, all users should review any material sent to ensure that any and all such information and images are appropriate for sharing. By choosing to post items or use any of our social or communication features, users acknowledge that they do so at their own risk, and agree that they will only share information and images which they have a legal right to share. ISTH cannot take any responsibility for such information collected or disclosed in such postings.
Users also are encouraged to review the privacy statements of any other websites visited via hyperlinks posted on our Website to understand how those websites collect, use and share information. ISTH is not responsible for the privacy policies or other content of third-party websites accessed through any ISTH website.
6. Payment Card Information
You may choose to purchase goods or services from the ISTH using a payment card. Typically, payment card information is provided directly by you, via the ISTH website, into the PCI/DSS-compliant payment processing service to which the ISTH subscribes, and ISTH does not, itself, process or store the card information. Occasionally, individuals ask ISTH employees to, on their behalf, enter payment card information into the PCI/DSS-compliant payment processing service. ISTH strongly encourages you not to submit this information by fax. When ISTH employees receive payment card information from individuals by email, fax, phone, or mail, it is entered as instructed and then deleted or destroyed.
7. Personal information we get from third parties
ISTH may receive personal information about individuals from third parties. For example, we may receive personal information from your employer if it signs you up for training or membership. One of our third-party training partners may also share your personal information with ISTH when you sign up for training through that partner.
8. Your Use of the ISTH Website
ISTH’s website automatically collects certain information and stores it. The information may include internet protocol (IP) addresses, the region or general location where your computer or device is accessing the internet, browser type, user’s computer hardware and software, and operating system, the type of Online Service being used (including the product ID or serial number and product license information) and other usage information about the use of ISTH’s website, including a history of the pages you view. We use this information to help us design our Website to better suit our users’ needs.
We also may collect general information about how, and how often, users use, browse, or view content on our websites, which products they buy and how users use and interact with our Online Services. This information, as well as information regarding access times and referring website addresses helps us maintain the quality of our services and gather general statistics about our Website users. In most cases, the usage information described above does not identify users personally, but in some cases may be linked to personal information such as an email address. Depending on which of our websites or the type of Online Service being used, and the specific type of usage information being collected, some or all of such information may be linked to the user's account.
Cookies, web beacons and do not track
The ISTH uses a marketing database management program that deploys a cookie when a user interacts with a marketing communication, such as a marketing email or a marketing-based landing page on our website. This cookie collects personal information such as your name, which pages you visit on the ISTH website, your history arriving at the ISTH website, your purchases from the ISTH and the like. We use this information to evaluate the effectiveness of our marketing campaigns. You may set your browser to block these cookies.
ISTH tracks users when they cross from our primary public website (ISTH.org) to our ISTH membership portion of the Website by logging in with their user name and password, as well as when visitors to our website enter through a marketing landing page. The ISTH does not track its users when they cross to third party websites, does not provide targeted advertising to them, and therefore does not respond to Do Not Track (DNT) signals.
9. Use and Processing of Personal Data
ISTH processes your personal data to provide you with the goods or services you have requested or purchased from us, including membership services, events, training, workshops, publications and other content. We use this information to refine our goods and services to better tailor them to your needs and to communicate with you about other services ISTH offers that may be relevant to you.
- administer the Website (e.g. your membership profile);
- personalize the Website for you;
- verify your identity when placing an order, logging into an account, or to prevent unauthorized access to or use of a user’s account information;
- enable your use of the services available on the Website;
- supply to you services purchased through the Website;
- send statements, invoices and payment reminders to you, and collect payments from you;
- send to you non-marketing commercial communications;
- send to you email notifications that you have specifically requested;
- send to you our email newsletters in respect of the e-Privacy-Regulation respectively in case you have accepted such service, (you can inform us at any time if you want to unsubscribe from the newsletters);
- deal with inquiries and complaints made by or about you relating to the Website;
- keep the Website secure and prevent fraud;
- identify ways that we can improve products and services to meet the needs of our users;
- verify compliance with the terms and conditions governing the use of the Website.
ISTH may use your personal information in the performance of any contract we enter into with you, to comply with legal obligations, or where ISTH has a legitimate business interest in using your information to enhance the services and products we provide. Legitimate business purposes include but are not limited to one or all of the following: providing direct marketing and assessing the effectiveness of promotions and advertising; modifying, improving or personalizing our services, products and communications; detecting fraud; investigating suspicious activity (e.g., violations of our Terms of Service, which can be found here) and otherwise keeping our Website safe and secure; and conducting data analytics.
In addition, we may use your information in the following ways (after obtaining your consent, if required):
- To provide you with information about products and services that you request from us;
- To send you periodic communications;
- To provide you with information about other products, events and services we offer that are either (i) similar to those you have already purchased or inquired about, or (ii) entirely new products, events and services;
- For internal business and research purposes to help enhance, evaluate, develop, and create ISTH websites (including usage statistics, such as "page views" on ISTH's Websites and the products therein), products, and services;
- To notify you about changes or updates to our Websites, products, or services;
- To administer our services and for internal operations, including troubleshooting, data analysis, testing, statistical, and survey purposes;
- To allow you to participate in interactive features of our service; and
- For any other purpose that we may notify you of from time to time.
10. When and How We Share Information with Others
Information about your ISTH purchases and membership are maintained in association with your membership or profile account. The personal information ISTH collects from you is stored in one or more databases hosted by third parties located in the United States. These third parties do not use or have access to your personal information for any purpose other than database storage and retrieval. ISTH may also engage third parties to send information to you, including items like publications you may have purchased, or material from an event sponsor.
ISTH does not otherwise disclose or otherwise transfer your personal data to third-parties unless: (1) you consent or authorize it; (2) it is necessary for the performance of the contract you have signed with us; (3) it is in connection with ISTH-hosted and ISTH co-sponsored conferences as described above; (4) the information is provided to comply with the law (for example, to comply with a search warrant, subpoena or court order, or for tax obligations), enforce an agreement we have with you, or to protect our rights, property or safety, or the rights, property or safety of our employees or others; (5) the information is provided to our agents, vendors or service providers who perform functions on our behalf; (6) to address emergencies or acts of God; or (6) to address disputes, claims, or to persons demonstrating legal authority to act on your behalf; and (7) through the ISTH Member Directory. We may also gather aggregated data about our members and Website visitors and disclose the results of such aggregated (but not personally identifiable) information to our partners, service providers, advertisers and/or other third parties for marketing or promotional purposes.
Please note that when we disclose or transfer your personal data to third-parties to provide limited services on our behalf, such as publishing and/or sending newsletters, operating our meetings, fulfilling and shipping orders that users have placed and completing transactions requested by users, we provide those companies with the information that they need to provide us with the specific task they have been hired to do, and we prohibit them from using that information for any other purpose, and we require them to abide by strict information privacy standards.
If you participate in Congresses, training, meetings or other events, ISTH may use and publish your Personal Data, photos and video impressions taken during the events and/or meetings for ISTH´s purposes.
ISTH will not, without your express consent, supply your Personal Data to any third party for their marketing purposes, whether directly or indirectly.
The ISTH makes member information available through the ISTH Member Directory to other ISTH members using the Website. Members may choose whether to keep their personal data private by logging into their account and changing their preferences.
11. Personal Data Transfer to the United States
12. Data Retention
13. Your Choices and Rights
Where processing is based on consent, you shall have the right to withdraw your consent at any time. The withdrawal of consent shall not affect the lawfulness of processing based on consent before its withdrawal.
With respect to communications preferences, a user can unsubscribe from newsletters by following the instructions included in any newsletter received. A user whose email address has changed and would like to continue to receive newsletters, will need to access the account and update the email address information and might need to sign-up again for the newsletter. Occasionally, we will send out emails concerning website disruptions, new products and other news about our products and services. These emails are sent to all account holders and are not subscription-based. Such emails are considered a part of our service to the users of our websites. A user can opt-out of these communications by following the opt-out instructions at the end of the email.
You may also request information about: the purpose of the processing; the categories of personal data concerned; who else outside ISTH might have received the data from ISTH; what the source of the information was (if you didn’t provide it directly to ISTH); and how long it will be stored. You have a right to correct/rectify the record of your personal data maintained by ISTH if it is inaccurate. You may request that ISTH erase that data or cease processing it, subject to certain exceptions. You may also request that ISTH cease using your data for direct marketing purposes. In some countries, you have a right to lodge a complaint with the appropriate data protection authority if you have concerns about how ISTH processes your personal data. If required by law, ISTH will, at your request, provide your personal data to you or transmit it directly to another controller.
14. Security of your Information
ISTH maintains physical, technical and administrative safeguards to help protect the privacy of data and personally identifiable information transmitted to ISTH. ISTH updates and test its security technology on a periodic basis. We restrict access to your personal data to those employees who need to know that information to provide benefits or services to you. We train our employees about the importance of confidentiality and maintaining the privacy and security of your information. We commit to taking appropriate disciplinary measures to enforce our employees' privacy responsibilities.
Any user who chooses to register with any ISTH website or on Online Service will be required to create a password. This password can be changed by the user at any time by first logging into the service by using the current password and then setting a new one. It is the user’s responsibility to keep the password confidential. A user who has logged in from a computer that is shared with others should always log out of the website before leaving it to prevent subsequent users of that computer from accessing information under their log in. A user who believes that someone has used their password or account without their permission, or has a reason to believe there might have been a breach of security, should notify us immediately to reset their password.
International Society on Thrombosis and Haemostasis
610 Jones Ferry Road, Suite 205
Carrboro, NC 27510-6113
Phone: +1 919 929-3807
We will not send promotional or marketing materials in response to contacts regarding a question or comment, unless you give consent.