Shared Decision Making

The Journey With Gene Therapy in Hemophilia: Session 1

Patient representative Brian O’Mahony and Courtney Thornburg, M.D. discuss "Shared Decision-making: The Journey With Gene Therapy." In this first session of a 2-part series, discover how to effectively discuss gene therapy with patients and their families, including eligibility, risks, access, benefits, administration, and monitoring.

The Journey with Gene Therapy in Hemophilia: Session 2

Tune in as patient representative Brian O’Mahony and Courtney Thornburg, M.D., continue this 2-part interactive series on navigating conversations about gene therapy alongside patients with hemophilia and their families. Discussion topics include eligibility, risks, access, benefits, administration, and monitoring.

Download Shared Decision Making Clinical Guide

Additional Resource: For more shared decision-making strategies, download the Clinical Companion Guide. This document provides insight on how conversations may need to be modified by treatment location due to local considerations, such as regulatory decisions and cultural nuances.

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Supported through educational grants from BioMarin, CSL Behring, Pfizer Inc., Roche, and Spark Therapeutics

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