Monthly Roundup: November 2024

Marica Moro, RN
Monthly Roundup: November 2024

The Nurse's Role in Treating Gene Therapy for Hemophilia

Presented by:
Marica Moro, RN
Angelo Bianchi Bonomi Hemophilia and Thrombosis Center
Fondazione IRCCS Ca’ Granda
Ospedale Maggiore Policlinico
Milan, Italy


Nurses play a key role in the success of gene therapy for hemophilia, working alongside the health care team to ensure effective treatment. Their responsibilities span three stages: before, during, and after the therapy.

Before treatment, nurses verify patient readiness, prepare medications, and ensure the correct dose. They also educate patients about the risks and benefits of the therapy. During the administration stage, nurses manage the infusion, monitor vital signs, and manage any side effects, such as allergic reactions. They carefully follow the prescribed infusion protocols, ensuring patient safety throughout the process. After treatment, nurses continue monitoring the patient and provide guidance on follow-up care, offering emotional support to patients and their families.

Ongoing education is crucial for nurses to stay updated and deliver the best care. Their proactive involvement is essential to the success of gene therapy, as they bridge the gap between advanced medical treatments and patient care.

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Supported through educational grants from BioMarin, CSL Behring, Pfizer Inc., Roche, and Spark Therapeutics

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