Monthly Roundup: January 2025

Ilaria Cutica, PhD
Monthly Roundup: January 2025

The Role of the Psychologist in Gene Therapy

Presented by:
Ilaria Cutica, PhD
Associate Professor
Department of Oncology and Hematoncology
University of Milan
Milan, Italy

It is important to consider the psychological aspects of gene therapy for individuals with hemophilia and the important role psychologists play in the decision-making process. Psychologists assist patients in clarifying their motivations and expectations, weighing the pros and cons, and determining what is most important to them when making decisions about gene therapy. Patients must reflect on their motivations for considering gene therapy, such as reducing the burden of current treatments or improving their quality of life. It is essential for patients to have realistic expectations about gene therapy, including an understanding of how it works, its potential side effects, and long-term risks. Patients may also have concerns, such as decreased clotting factor levels or other side effects, which should be discussed with their psychologist.
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Supported through educational grants from BioMarin, CSL Behring, Pfizer Inc., Roche, and Spark Therapeutics

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