Conference Coverage

The World Federation of Hemophilia's "Genetic Technologies for Hemophilia" page provides educational resources on genetic approaches, aiding shared decision-making between clinicians and patients. It includes an information sheet detailing gene therapy and gene editing, their mechanisms, and differences from traditional treatments. A webinar further distinguishes gene editing from other genetic technologies. The WFH Laboratory Manual, Shared Decision-Making Workbook, and Global Forum summary contextualize these technologies within the broader diagnostic and therapeutic landscape. These materials assist patients and families in understanding genetic technologies, setting clear goals, and making informed decisions through detailed explanations and practical tools.